My Story

Dear Friends and Supporters,

I'm very excited (and a little nervous!) to be running the London Marathon this year on 21st April to help raise urgently needed funds for a small but remarkable charity that is particularly close to my heart.

Unique is a UK registered charity, operating globally, whose mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome or gene disorder. Please visit www.rarechromo.org for full information.

Imagine having a baby, realising something is wrong and receiving a diagnosis of a chromosome or gene disorder, only to be told by the doctors that they don’t know what the future holds and can’t answer your many questions. For my family, and about 30,000 others in over 100 different countries worldwide, Unique is quite literally the only place to turn for information, and support. With about 150 new families joining Unique every month the rate of growth shows no sign of slowing down.

Unique urgently needs to raise £30,000 to replace their old database to create a new more powerful patient registry to increase their knowledge and understanding of the lifelong impacts on children and adults with rare chromosome and gene disorders and to encourage further research.

I would really appreciate any donations, large or small, that can help Unique raise these funds to upgrade their database which is really at the heart of all they do.

Thank you so much for your support!

Emma x