My Story

As some of you may or may not know my beautiful niece suffers with Rett Syndrome  this is a debilitating brain disorder which robs girls right around the age that most children are learning to walk,talk of their mobility,their speech and use of their hands. There is no approved treatment to help slow the progression of the disease or to help many with any of the difficult symptoms.

I'm raising money for Rett Uk which provides much  needed support to people living with Rett Syndrome. 

Rett Syndrome changes lives irrevocably with your support Rett Uk is there from the beginning!!!

Please help support Rett Uk with following me from going couch to Marathon!!!

Stay posted for lots of tomato red face updates!

#doingitforflossychops!!