I ran the London Marathon for the first time last year. It was in fact my first marathon ever and while I was proud to have completed it, it's fair to say me and the London Marathon have some unfinished business!
When looking for a charity to support this time around I was keen to find a smaller charity that perhaps doesn't receive the airtime of some of the bigger charities and where I felt every £1 raised would really make a difference to people's lives.
I was delighted to find the Duchenne Family Support Group (DFSG) - which is run by volunteers and provides invaluable support to 650 families in the UK who are affected by Duchenne Muscular Dystrophy (DMD).
DMD is a condition I have been aware of for several years but which I rarely see any coverage of despite it being the most common and severe form of the neuromuscular condition. Affecting mostly boys, there are an estimated 2500 people living with DMD in the UK. Symptoms begin in early childhood when patients gradually lose mobility, often dying from heart or respiratory failure in their second or third decades. There is currently no cure.
The DFSG comprises a band of dedicated parents, carers and other volunteers who provide an essential national support network for families and professionals. The DFSG offer helplines and online support as well as arranging and subsidising day trips and much needed holidays where affected families and patients can come together and support each other physically and emotionally.
This is a great cause. Determined people banding together to do enormously important and impactful work. If you feel you can support me and more importantly, DFSG then your sponsorship is really most appreciated.
I ran the London Marathon for the first time last year. It was in fact my first marathon ever and while I was proud to have completed it, it's fair to say me and the London Marathon have some unfinished business!
When looking for a charity to support this time around I was keen to find a smaller charity that perhaps doesn't receive the airtime of some of the bigger charities and where I felt every £1 raised would really make a difference to people's lives.
I was delighted to find the Duchenne Family Support Group (DFSG) - which is run by volunteers and provides invaluable support to 650 families in the UK who are affected by Duchenne Muscular Dystrophy (DMD).
DMD is a condition I have been aware of for several years but which I rarely see any coverage of despite it being the most common and severe form of the neuromuscular condition. Affecting mostly boys, there are an estimated 2500 people living with DMD in the UK. Symptoms begin in early childhood when patients gradually lose mobility, often dying from heart or respiratory failure in their second or third decades. There is currently no cure.
The DFSG comprises a band of dedicated parents, carers and other volunteers who provide an essential national support network for families and professionals. The DFSG offer helplines and online support as well as arranging and subsidising day trips and much needed holidays where affected families and patients can come together and support each other physically and emotionally.
This is a great cause. Determined people banding together to do enormously important and impactful work. If you feel you can support me and more importantly, DFSG then your sponsorship is really most appreciated.
