DEBRA

Natalie's page

Natalie Smith

Natalie Smith

My Story

I'm running the 2024 TCS London Marathon both as a personal challenge, and to raise money for Debra. 

The London marathon has always been a goal of mine, even when I was younger and I would watch my Dad during his events. Now, it is my turn and it is the final event to complete before I can obtain a coveted London Classics medal! 

I am so excited to be part of #TeamDEBRA. 

EB is a rare, genetic skin blistering condition that causes the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. People with EB live in constant, debilitating pain and need your support today.

https://youtube.con/watch - BE the difference for EB

The objective of the ‘BE the difference for EB’ appeal is to raise £5m by the end of 2024. With this funding we will: 

  • offer specialist mental health counselling and resources to the EB community. 
  • offer more financial grants to the EB community, including funding for specialist products to alleviate EB symptoms, and grants and/or signposting to financial support available to ensure every member can attend their vital EB healthcare appointments. 
  • offer nationwide access to the DEBRA UK community support team, including a programme of regional EB Connect events. 
  • continue to accelerate our drug repurposing programme as we seek to secure effective drug treatments for every type of EB. 

The London Marathon has become an annual, inspiring and colourful fixture in the world’s sporting calendar since the inaugural race on 29 March 1981: a celebration of fun, fundraising and fancy dress.

Over the years more than a million people have completed the 26.2-mile course – which runs from Blackheath to The Mall, with a spectacular finish in front of Buckingham Palace, showcasing the very best that the capital city has to offer.

What’s more, these participants have raised over a billion pounds for charity and there have been countless amazing tales of human achievement throughout the event’s history – living up to its aim of helping participants ‘to have fun, and provide some happiness and sense of achievement in a troubled world’.

DEBRA

Raising for:

DEBRA
72%

Funded

  • Target
    £2,000
  • Raised so far
    £1,445
  • Number of donors
    45

My Story

I'm running the 2024 TCS London Marathon both as a personal challenge, and to raise money for Debra. 

The London marathon has always been a goal of mine, even when I was younger and I would watch my Dad during his events. Now, it is my turn and it is the final event to complete before I can obtain a coveted London Classics medal! 

I am so excited to be part of #TeamDEBRA. 

EB is a rare, genetic skin blistering condition that causes the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. People with EB live in constant, debilitating pain and need your support today.

https://youtube.con/watch - BE the difference for EB

The objective of the ‘BE the difference for EB’ appeal is to raise £5m by the end of 2024. With this funding we will: 

  • offer specialist mental health counselling and resources to the EB community. 
  • offer more financial grants to the EB community, including funding for specialist products to alleviate EB symptoms, and grants and/or signposting to financial support available to ensure every member can attend their vital EB healthcare appointments. 
  • offer nationwide access to the DEBRA UK community support team, including a programme of regional EB Connect events. 
  • continue to accelerate our drug repurposing programme as we seek to secure effective drug treatments for every type of EB. 

The London Marathon has become an annual, inspiring and colourful fixture in the world’s sporting calendar since the inaugural race on 29 March 1981: a celebration of fun, fundraising and fancy dress.

Over the years more than a million people have completed the 26.2-mile course – which runs from Blackheath to The Mall, with a spectacular finish in front of Buckingham Palace, showcasing the very best that the capital city has to offer.

What’s more, these participants have raised over a billion pounds for charity and there have been countless amazing tales of human achievement throughout the event’s history – living up to its aim of helping participants ‘to have fun, and provide some happiness and sense of achievement in a troubled world’.