Nell’s Marathon for Cystic Fibrosis
Nell Summerley
My Story
This is going to come as a shock (I still can’t quite believe it!) but I am going to be RUNNING THE LONDON MARATHON 2024!!
For those unaware I have Cystic Fibrosis which is a disease that effects mainly the lungs and digestive system as well as impacting many other parts of the body. The year after I was diagnosed my dad ran the London marathon which ignited this dream in me to always want to run it. Because of my health I never thought it would be possible. From the age of 8, when I was diagnosed, until I was 18 I was in and out of hospital with some serious lows in my health. I often found myself avoiding things that Cystic Fibrosis put limits on as I was scared of not being able to keep up with everyone else. Then in March 2020 I started taking what I call the ‘miracle drug’ Symkevi and Kalydeco and more recently Kaftrio. It is weird for me that people I have met in the last 4 years have never known the side of me who could get quite that ill. Now I function as a near enough normal person! I always had the worry that I’d never be able to hold down a job because of the amount of time I used to be off ill or at appointments. But now, I can even sometimes forget I’ve got CF! So for some crazy reason after watching my cousin Milo run the marathon last April I decided this was something I fancied giving a shot! So on the 21st of April if you happen to be in London look out for a short girl who might quite possibly be crawling along the ground!
I feel very grateful to have benefited from what all the fundraising has achieved for people with Cystic Fibrosis. However, this miracle drug doesn’t work for everyone with CF, and there is still no cure which is why it is so important to continue raising money and awareness, in the hope that one day everyone with CF can have the chance to feel the same way I do and run the marathon if they fancy (or are crazy enough)!!
Any support would be greatly appreciated whether that be donations, cheering me on in London or spreading the word ! I’d also like to say thank you to those who have/will have to put up with me making running the marathon my only personality trait !
P.s can I also mention the biggest wild card of 2024 which is my brother Charlie running the Leeds half, further proving CF ain’t got nothing on us Summerleys!!!
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Target
£5,000
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Raised so far
£9,883
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Number of donors
166
My Story
This is going to come as a shock (I still can’t quite believe it!) but I am going to be RUNNING THE LONDON MARATHON 2024!!
For those unaware I have Cystic Fibrosis which is a disease that effects mainly the lungs and digestive system as well as impacting many other parts of the body. The year after I was diagnosed my dad ran the London marathon which ignited this dream in me to always want to run it. Because of my health I never thought it would be possible. From the age of 8, when I was diagnosed, until I was 18 I was in and out of hospital with some serious lows in my health. I often found myself avoiding things that Cystic Fibrosis put limits on as I was scared of not being able to keep up with everyone else. Then in March 2020 I started taking what I call the ‘miracle drug’ Symkevi and Kalydeco and more recently Kaftrio. It is weird for me that people I have met in the last 4 years have never known the side of me who could get quite that ill. Now I function as a near enough normal person! I always had the worry that I’d never be able to hold down a job because of the amount of time I used to be off ill or at appointments. But now, I can even sometimes forget I’ve got CF! So for some crazy reason after watching my cousin Milo run the marathon last April I decided this was something I fancied giving a shot! So on the 21st of April if you happen to be in London look out for a short girl who might quite possibly be crawling along the ground!
I feel very grateful to have benefited from what all the fundraising has achieved for people with Cystic Fibrosis. However, this miracle drug doesn’t work for everyone with CF, and there is still no cure which is why it is so important to continue raising money and awareness, in the hope that one day everyone with CF can have the chance to feel the same way I do and run the marathon if they fancy (or are crazy enough)!!
Any support would be greatly appreciated whether that be donations, cheering me on in London or spreading the word ! I’d also like to say thank you to those who have/will have to put up with me making running the marathon my only personality trait !
P.s can I also mention the biggest wild card of 2024 which is my brother Charlie running the Leeds half, further proving CF ain’t got nothing on us Summerleys!!!
