My Story

I'm running the London Marathon for Chordoma UK in April 2024, a charity funding research in Chordoma, a rare bone cancer found in the spine.

My lovely friend Kate was diagnosed with Chordoma in 2021 at the age of 25. She has undergone numerous treatments and operations since then, and has continued to be a legend the whole time.

Chordoma UK financially supports ground breaking research initiatives at UCL Cancer Institute and other institutions whilst underpinning the UK chordoma community through support and information resources. Due to its rarity and differences from other cancers, Chordoma receives very little funding from large research organisations. 

Chemotherapy is currently not an effective treatment for Chordoma. In fact, there are no approved drugs to treat Chordoma. This means that people with Chordoma need to undergo high risk spinal surgeries with life-changing effects, and travel huge distances or live away from home to receive the right care. If surgery isn't possible, patients are often left without further options of treatment.

More targeted research needs to be carried out in order to help those with Chordoma, and this research relies on the work of Chordoma UK.

Please donate to this incredible charity if you can, and be sure to leave your name so that I can say thank you. Brb just eating some pasta.

Niamh xx