Gauchers Association

Rory's page

Rory Hodges

Rory Hodges

My Story

In 2023 I represented my school in the National Devizes to Westminster canoe race. A gruelling 120 miles of rowing. The training schedule was intense and every weekend we were training on the river! The race was stopped before we got onto the Thames (so after about 70 miles) as the river levels were so high and running dangerously fast. My friend , Tommy and I raced in the same boat and trained together. We were the fastest under 17 boat.
Tommy and I decided a new challenge for 2024 would be something to work towards before we left sixth form so we applied for a charity place in the London Marathon. We got in!!
So I am hard at it having never actually run a long distance before so it will definitely be a massive challenge.
I am running for the Gaucher disease charity.
Any donations big or small would definitely go along way in helping the charity and would be hugely appreciated.
I aim to provide updates of my training and I am looking forward to taking part!

The charity needs the money to continue the best treatments available.
What Is Gaucher Disease?
Gaucher disease is a genetic disorder where fat-laden Gaucher cells build up in areas like the spleen, liver and bone marrow. A person will get Gaucher Disease if both parents are carriers of the disease. It is one of the most common lysosomal storage disorders.
What Causes Gaucher Disease?
Gaucher disease is caused by low levels of glucocerebrosidase (GCase), an enzyme that breaks down a fatty chemical in the body called glucocerebroside. Gaucher cells are normal scavenger cells called macrophages that become full of unprocessed glucocerebroside. Gaucher cells accumulate primarily in the spleen, liver and bone marrow, causing organ inflammation and dysfunction.

Thanks

Gauchers Association

Raising for:

Gauchers Association
76%

Funded

  • Target
    £2,500
  • Raised so far
    £1,907
  • Number of donors
    85

My Story

In 2023 I represented my school in the National Devizes to Westminster canoe race. A gruelling 120 miles of rowing. The training schedule was intense and every weekend we were training on the river! The race was stopped before we got onto the Thames (so after about 70 miles) as the river levels were so high and running dangerously fast. My friend , Tommy and I raced in the same boat and trained together. We were the fastest under 17 boat.
Tommy and I decided a new challenge for 2024 would be something to work towards before we left sixth form so we applied for a charity place in the London Marathon. We got in!!
So I am hard at it having never actually run a long distance before so it will definitely be a massive challenge.
I am running for the Gaucher disease charity.
Any donations big or small would definitely go along way in helping the charity and would be hugely appreciated.
I aim to provide updates of my training and I am looking forward to taking part!

The charity needs the money to continue the best treatments available.
What Is Gaucher Disease?
Gaucher disease is a genetic disorder where fat-laden Gaucher cells build up in areas like the spleen, liver and bone marrow. A person will get Gaucher Disease if both parents are carriers of the disease. It is one of the most common lysosomal storage disorders.
What Causes Gaucher Disease?
Gaucher disease is caused by low levels of glucocerebrosidase (GCase), an enzyme that breaks down a fatty chemical in the body called glucocerebroside. Gaucher cells are normal scavenger cells called macrophages that become full of unprocessed glucocerebroside. Gaucher cells accumulate primarily in the spleen, liver and bone marrow, causing organ inflammation and dysfunction.

Thanks